Posts Tagged ‘SVT’


Repeat & Add Craziness!

July 28, 2017

Does this year really need to repeat everything about last year?

One “perfect for you” job that I didn’t get. Adopt a dog on June 11. Second “perfect for you” job that I didn’t get. Now just waiting for that third job. Stinks. But I refuse to sink. I am trusting God again.

If I had gotten the first job this year, I’d be working full-time, 12-months a year. That just wouldn’t work right now. Two days ago we found out T1 has mild to moderate hearing loss of all the middle ranges in both ears.

Normal hearing is between -10 to 20 dB. T1 hears low sounds and high sounds in those ranges. Mild hearing deficit is between 20 to 40 dB. Moderate hearing deficit is between 40 to 70 dB. All of the middle sounds for T1 fell between 40 and 70 dB.

This is a “sound banana.” (Found on Pinterest, source unknown.)


The middle sounds are between 500 and 3,000 Hz.

During the word tests, if they turned up the volume she could hear about 88% in one ear and 92% in the other.

Of course I asked if this was from earwax (a chronic problem for her)…nope, no wax to speak of. She hasn’t had an ear infection since 2012 that we know of and currently no fluid behind the ear drums. I asked if this was from earbuds and always wearing them… nope, no evidence of sound trauma from the other tests they performed. Looks like a nerve deficit.

To say that I was stunned is putting it mildly. T1 handled it great–she is relieved to know the hearing loss is real. Maybe her sister will stop picking on her and calling her deaf!

In short I contacted every family member I could, but I was desperate to hear from the Chief. I eventually called the ship on the satellite phone. Something I don’t think I’ve done in like 5 years.

The ENT is recommending either an amplifier or hearing aids but he wants to find the cause by ruling out some pretty serious genetic conditions. In case you weren’t aware, the inner ears and the kidneys form in utero at the same time. Often if one has kidney disease, one has a hearing problem and vice versa. So T1 needs a urinalysis. There are some chronic heart conditions, not “momentary” like my SVT, that also could indicate a hearing issue. So T1 needs an EKG. Need to find a pediatric cardiologist. The inner cochlear bones could be malformed. So T1 needs a CT scan. The ENT could order the CT scan but I needed to get her pediatrician to either do the other tests or order them.

And after talking to a friend who just got hearing aids, those will be a series of appointments as well… one to get a trial pair, one to see how the trial went, one to fit the ones we’ll buy, one to retest in the booth how they are working, etc.

And the Chief is at sea and due to circumstances out of his control may not get home until the end of August.

Pediatrician visit and urinalysis complete today. Her pediatrician, who had only started her private practice within the year T1 was born and had seen her less than a day old, was in as much shock as I was. We talked family medical history and about all the testing the ENT wanted. Opted to get T1 into Children’s Hospital for the cardiologist rather than just a routine clinic EKG. (“If there is a problem she’ll need a cardiologist anyway…”) Of course I couldn’t get into the closest branch until late September but by choosing a different branch she could be seen sooner and at least I don’t have to go all the way to the big city like when T2 had her first mystery illness. Cardiologist scheduled for the 7th and the CT scan will be local on the 10th. Follow-up with the ENT on the 28th.

Last night we told her private teacher for viola lessons about the hearing deficit. After his initial shock he said, “Now things make sense. She doesn’t self-correct like she should.” She has college scholarship auditions to prepare for–now we know we have additional work to accomplish.

Got a call today to see if we wanted to start the hearing aid process. I am not ready for that. Gadgets are not my thing. I know the Chief will research every model out there and have all the pros and cons and customer reviews on hand. He’ll look at cost and efficiency. He wants to know if this will be progressive. I’m going to wait until the 28th, crossing my fingers that he will be home, to start the process. I am not up to doing this alone.

On the drive home today T1 was silent so at the red light I signed, Are you okay? Of course she scowled at me. I had been jokingly signing I love you since the day before. I stopped giggling and said, “I have to joke about it because I think if I didn’t, I’d cry.”



The light turned green and I caught her out of the corner of my eye signing Are you okay?

“Maybe I have to find your old sign language books and watch YouTube to teach myself sign language. I might need it in the future.”

Like I said, she’s handling it better than I am.


I think I’ll pass…

August 19, 2014
Source unknown; found on FaceBook

Source unknown; found on FaceBook

I’m loving all the ice bucket challenges and loving it even more that people are donating to a great cause. I’ve been challenged–interestingly right after having a conversation about it at the gym–and I will politely decline the challenge because dunking my head in a bucket of ice water is a vagal maneuver I can try to disrupt an SVT episode… I really don’t want to see what it would do to my heart if I wasn’t already out of rhythm. But we will gladly be making a donation.

BTW, T1 has been challenged so we’ll see if she takes my easy way out or goes through with it tomorrow. Something tells me I might just enjoy it a little too much.


How to Tell the Difference between an Emergency and a Non-Emergency

May 7, 2013

The Chief just had to explain to his new Captain that if I’m calling the ship’s phone for the first time in years, even if I say it’s not an emergency, IT’S AT LEAST PRETTY DARN IMPORTANT.

The Chief is not in trouble.

I just had another heart episode.

I could make a joke that it happened while doing laundry–“See? House work really will kill me.”

But he will point out that the one I had 5 weeks ago was at the gym.

Ok. “See? Getting healthy will kill you too.”

Yes … I will call the doctor now.


At 2:30, Tooth Hurty

January 5, 2012

So when I ran away to the Wizarding World, my tooth started hurting. I ignored it for well, 6 weeks. The dentist, who was swamped, wanted me to go to the doctor to rule out a sinus infection first. Yeah, then the gum started swelling and discoloring even though I had been on antibiotics.

It turns out that it was indeed the tooth. A tooth with a nice crown on it and I had suffered through a root canal for 5 years ago.

So I had to get it pulled. I’m a special case–I get to be hooked up to monitors because the extra epinephrine in the Novocaine shots can trigger my heart problem as we learned during my root canal.

I could still feel a great deal of pain when the dentist first attempted to assess things this afternoon so I had to get additional shots.

And honestly, I still hurt as he was yanking the tooth out. Oh, and I almost swallowed the crown when it got popped off.

So there was a huge vertical crack in the tooth and a pocket of infection. (Though the antibiotics had reduced this.)

I’m having trouble clotting and am already nauseous from my PA meds. It’s been a fun afternoon. I’m leery of taking the “happy pills” I got prescribed.

The dentist first mentioned an implant and I totally put the kibosh on that–“I have an autoimmune disease. It’s too expensive a procedure to risk infection and possible rejection (uh, like the root canal).” So I’ll be looking at a bridge later this year and just have to hope that extensive work on the two teeth that will have to support it will not cause more problems or possibly kill more teeth.

And yes, both DH and the dentist got a kick out of telling me jokes about how at 2:30, the time of my appointment, the tooth hurty. Sick men. Do they not appreciate my pain?

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